FAQ|J-ORBIT　Japan Obesity Research Based on electronIc healTh record

FAQ for Medical Institutions

Q How can my institution join the J-ORBIT project?: A

We are continuously welcoming new medical institutions to participate in this project. Please contact us [here] for further information.

Note that certain conditions must be met to join the project, such as having electronic medical records (EMR) systems installed and being equipped with the SS-MIX2 infrastructure.
Q How is patient privacy and data security ensured in this research?: A

Patient data are anonymized within the institution using the MCDRS system and then regularly transmitted to the Obesity Data Cloud Center.

Patients who prefer not to participate may opt out, and their information will not be included in the database.

Q If I participate in this study, how will my personal information be managed?: A

All clinical information used in this research is anonymized. Only anonymized data will be handled, ensuring that personally identifiable information does not leave the participating institution.

Additional measures to protect personal data include using data solely for purposes approved by institutional review boards, avoiding the publication of analytical results that could identify individuals, and encrypting data during transmission.
Q What are the benefits and risks of participating in this research?: A

Participation in this study will not significantly alter your regular treatment. However, using standardized medical record templates during consultations may reduce omissions of important medical information, potentially improving the quality of care.

Moreover, this project helps gather essential clinical data on obesity at a national level, which may contribute to improved obesity care practices in the future.

Participation involves minimal burden, and no disadvantage will result from choosing not to participate.